The journey of caregiving is a delicate dance of emotions and responsibilities, especially for parents of disabled children who face societal pressures. Home and community care services provide essential support and respite, allowing families to maintain a safe environment and caregivers to recharge. Self-care, such as meditation or exercise, is critical for caregivers to sustain their well-being and continue their responsibilities.
In this episode, host Annette Hines sits with Kelley Coleman as she shares her journey of parenting a disabled child, revealing how it led her to write “No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services, and Supports.” Kelley expresses the importance of accessing accurate information and insights directly from individuals with disabilities to combat stigma and misconceptions. Her book serves as a practical guide for caregivers, filled with invaluable checklists, personal stories, and strategies for self-care, effective communication, and advocacy. Kelley and Annette bond over their shared love for practical tools, discussing the significance of job training in caregiving and urging caregivers to establish boundaries and prioritize their well-being. They reflect on their own experiences, the emotional toll of caregiving, and the power of a supportive community.
In this episode, you will hear:
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Why it is important to seek insights from individuals with disabilities
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Addressing the challenges faced by parents of disabled children
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How caregivers can prioritize self-care and establish boundaries
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Why it is important to advocate for home and community-based care services
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What resources are available for caregivers of children with disabilities
Resources from this Episode:
Kelley Coleman: http://www.kelleycoleman.com
Facebook: @kelley.coleman.56
Instagram: @hellokelleycoleman
Engage with us:
Join our community: Circle of Care
Visit: https://annettehines.com
Read Butterflies and Second Chances
LinkedIn: @annette-hines-snc
Instagram: @parentingimpossible
Facebook: @SpecialNeedsCompanies
Twitter: @SpecialNeedsCo
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