@RareDiseaseDad and DadVocate are the monikers for Adam Johnson who is now a rare disease patient advocate who hosts a podcast called Parents As Rare that features stories of others like him who are affected by rare or chronic diseases. Host Annette Hines and Johnson discuss a range of topics relating to the struggle that he faced in 2019 when his symptoms related to mitochondrial disease started emerging in the prime of his education career and family life as a husband and dad. Although advocacy or rare disease were not in the realm of possibility for him previously, today Johnson's advocacy and voice related to how parents with rare diseases manage their diagnosis, lives, and grief unite others in the disability world. You can listen to the Parents As Rare podcast and read more about Adam Johnson on his website: rarediseasedad.com or on Twitter and Instagram by his handle: @RareDiseaseDad
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